OT: RCB Help Desperately Needed! Please Read!

OT: RCB Help Desperately Needed! Please Read!

Post by Rachel T » Thu, 15 Jul 2004 02:37:33



Ok all...Normally I wouldn't do this...

I just talked to my mom about Rebekah (the correct way to spell her name by
the way lol) and at the beginning of August, they have to go to Columbus for
treatment. Then in January, they have to go back where Rebekah will have to
stay for 4-6 weeks with no one allowed in her room but her parents. (which
will be hard because the twins are still nursing)

Her parents are starting to run out of money. Meaning, their insurance is
running down ( dad works, mom doesn't. She stays at home with the kids, all
under 5 yr's old and 2 of them are twins.) Dad is also running out of leave
time from work.

When they go to Columbus, they are not sure of where they are going to stay
because the Ronald McDonald house is currently being renovated. They aren't
sure if they will still be able to stay there, or will have to stay in a
hotel. Or if they have to pay for the hotel.

They have had a couple of fundraisers in Rebekah's name already. Well,
actually, the church had a sale and donated part of the profits.

If anybody has any ideas, let me know. Keep in mind, though, that we are not
a creative family for the most part. I am the only one who makes anything
and what I have wouldn't go for much of anything. Nor does anyone have
anything really to sell. (we're a fairly poor family collectivly. lol) Also,
a good majority of the family has small children, so putting together a sale
might be hard to do.

This is kind of hard for me to do here. I'm not one to ask for handouts. But
I was asked by my mom to come up with something.

When she goes to Columbus, the doctors said that she will most likely become
extremely sick from the treatments. And that they should find people to
watch their other kids. That will be no easy task. Like I said, the members
of my family who don't work, have little ones of their own and the ones who
don't work all day. It will be quite a task to accomplish this.

So if anybody has ideas to make money to help them out, or (and I sheepishly
say this) would care to donate funds, let me know.

Please know that the only way that this involves me, is to pass everything
on. I have this strange fear in the back of my head of someone possibly
thinking that this might be for me. Not at all.

Anything is greatly appreciated.

Thanks,
Rachel

--

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Kalera Stratto » Thu, 15 Jul 2004 03:31:43


Have you considered doing some charity auctions? I would definitely
donate beads for the cause.

-Kalera
http://www.beadwife.com
http://www.snipurl.com/kebay

Quote:

> Ok all...Normally I wouldn't do this...

> I just talked to my mom about Rebekah (the correct way to spell her name by
> the way lol) and at the beginning of August, they have to go to Columbus for
> treatment. Then in January, they have to go back where Rebekah will have to
> stay for 4-6 weeks with no one allowed in her room but her parents. (which
> will be hard because the twins are still nursing)

> Her parents are starting to run out of money. Meaning, their insurance is
> running down ( dad works, mom doesn't. She stays at home with the kids, all
> under 5 yr's old and 2 of them are twins.) Dad is also running out of leave
> time from work.

> When they go to Columbus, they are not sure of where they are going to stay
> because the Ronald McDonald house is currently being renovated. They aren't
> sure if they will still be able to stay there, or will have to stay in a
> hotel. Or if they have to pay for the hotel.

> They have had a couple of fundraisers in Rebekah's name already. Well,
> actually, the church had a sale and donated part of the profits.

> If anybody has any ideas, let me know. Keep in mind, though, that we are not
> a creative family for the most part. I am the only one who makes anything
> and what I have wouldn't go for much of anything. Nor does anyone have
> anything really to sell. (we're a fairly poor family collectivly. lol) Also,
> a good majority of the family has small children, so putting together a sale
> might be hard to do.

> This is kind of hard for me to do here. I'm not one to ask for handouts. But
> I was asked by my mom to come up with something.

> When she goes to Columbus, the doctors said that she will most likely become
> extremely sick from the treatments. And that they should find people to
> watch their other kids. That will be no easy task. Like I said, the members
> of my family who don't work, have little ones of their own and the ones who
> don't work all day. It will be quite a task to accomplish this.

> So if anybody has ideas to make money to help them out, or (and I sheepishly
> say this) would care to donate funds, let me know.

> Please know that the only way that this involves me, is to pass everything
> on. I have this strange fear in the back of my head of someone possibly
> thinking that this might be for me. Not at all.

> Anything is greatly appreciated.

> Thanks,
> Rachel


 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Rachel T » Thu, 15 Jul 2004 03:59:28


Great ideas, Kathy. I'm going to print this out.

I did suggest the Social Security route.

As far as the schools, she's not in school yet so, I don't know how that
would work. Doesn't hurt to try.

The babysitting route..the twins aren't even a year yet. I do know that a
few of older cousins do stay at night to help out. They switch shifts.

This is going to take itme, obviously, but your suggestions will be a great
start.

Thanks!

Rachel

--


Quote:
> On Tue, 13 Jul 2004 13:37:33 -0400, Rachel T. wrote

> > Her parents are starting to run out of money. Meaning, their insurance
is
> > running down ( dad works, mom doesn't. She stays at home with the kids,
all
> > under 5 yr's old and 2 of them are twins.) Dad is also running out of
leave
> > time from work.

> Okay, first place for Dad to stop is with the benefits person at his
> work.  He needs to apply for FMLA (in the US).  If the employer has
> over 50 employees, it is required to provide this benefit.  That
> provides job security and will keep the health insurance in force,
> although they don't have to give salary.  (Some do, though, and some
> states allow the person to collect unemployment)

> > When they go to Columbus, they are not sure of where they are going to
stay
> > because the Ronald McDonald house is currently being renovated. They
aren't
> > sure if they will still be able to stay there, or will have to stay in a
> > hotel. Or if they have to pay for the hotel.

> Stop II:  Contact the people at the Ronald Macdonald house and see
> what arrangements they have made for families while they're
> renovating.  I'd bet a dollar that they have reserved a block of
> rooms at a hotel for families to use at a free or greatly reduced
> rate.  This is a well run organization, and wouldn't just drop off
> the face of the Earth for months, leaving families in a bind.

> Stop III:  Ask for an appointment with the hospital ombudsman or
> financial officer.  Apply for free care (that's what it's called
> under the law)  It's her job to work out financial details between
> insurance companies, patients and the hospital.  She's on your side,
> and can make the money part of treatment become a lot less stressful.
> There will be forms to fill out, but that's just to prevent people
> who don't want to pay from getting benefits, as opposed to people for
> whom treatment will cause a financial hardship.

> Stop III:  Social Security office.  Really.  If Rebekah is disabled,
> and the disability is expected to last a year or more, she may be
> entitled to collect disability benefits.  It's a headache to apply,
> but could really help in the long run.  Her benefits will be tied to
> the amount her highest paid parent put into the system, since most
> five year old kids don't pay FICA.  If she gets SSDI, she can also go
> on Medicare after a while, and the insurance problems will then
> disappear.

> Stop IV:  Public School System wherever she lives.  By law, your
> niece has the right to a free and appropriate public education (as do
> her sibs).  There are boatloads of services that can be provided by
> the school system that fulfill this requirement.  My step-nieces have
> some serious health challenges, and their school system does amazing
> things for them - even to the point of building ramps to the house
> for the wheelchairs and such.  Respite care for parents is part of
> this mandate.

> Schools are often amazing in arranging fund raisers for their
> students as well - my town throws at least five or six each year for
> different kids facing big health challenges.

> > If anybody has any ideas, let me know. Keep in mind, though, that we are
not
> > a creative family for the most part. I am the only one who makes
anything
> > and what I have wouldn't go for much of anything. Nor does anyone have
> > anything really to sell. (we're a fairly poor family collectivly. lol)
Also,
> > a good majority of the family has small children, so putting together a
sale
> > might be hard to do.

> Most communities have support groups for families with children
> battling serious health issues.  Ask at the hospital or Ronald
> Macdonald house for some referrals.  Those folks, out of necessity,
> know how to get every benefit that's coming to their kids.  After all
> those avenues are exhausted, then worry about putting on sales and
> such.  I'd be surprised if it turns out to be necessary.  One person
> in your family is going to have to become amazing with paperwork and
> organization - take my word for it.

> If you are very organizational, it can be you -- get yourself some
> file folders and start documenting everything.  You might have to
> debrief with the parents on a daily basis, but it is well worth it.
> I got _everything_ paid for when my MIL had cancer - it turned out to
> be emotional Hell, but not financial.

> > When she goes to Columbus, the doctors said that she will most likely
become
> > extremely sick from the treatments. And that they should find people to
> > watch their other kids. That will be no easy task. Like I said, the
members
> > of my family who don't work, have little ones of their own and the ones
who
> > don't work all day. It will be quite a task to accomplish this.

> There is one set of twins as siblings?  Do you have a YMCA in your
> town?  Here, the Y provides day care for kids who need it, regardless
> of cost.  A family member can contact them for all the details, and
> then it would be caring for the sibs at night, which can be
> accomplished by people who work during the day.  Perhaps they could
> split the night care with (say) an aunt and the grandparents.

> What you don't want is a different person taking care of the kids
> each day.  It would be a horror for the little ones, and boy howdy
> will they start acting out!  (No one needs that right now) I wonder
> if it's possible for the kids to go to day care during working hours
> and their own home at night.  It'll be tough on the parents, but if
> one of you guys could stay overnight to lend a hand (and that can
> easily be someone different every day), it would keep the family
> together and help the siblings manage during this time.  Probably the
> most emotionally healthy way of handling the whole thing.

> > Please know that the only way that this involves me, is to pass
everything
> > on. I have this strange fear in the back of my head of someone possibly
> > thinking that this might be for me. Not at all.

> Never!  That would make you Pure Evil, and you most certainly are
> not.

> You're in my thoughts and prayers, and I hope that we can help.  I'll
> do whatever I can, and Rebekah will be in our hearts every day.

> Hugs,

> Kathy N-V

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Rachel T » Thu, 15 Jul 2004 04:02:45


Well... I personally have no way to set up for something like ebay. That
would have to take some thinking on that one, but it's not out of the
question. As far as auctions around here, I have no idea how to go about
setting one up. If anybody has info on that, I'll be glad to take it. Then
there'd be the task of finding people to help out. Babysitters for
everybody's kids, etc.

I will definetly give this some good thought. If you or anybody else has
ideas on how to set up an auction around here, please let me know.

Thanks!
Rachel

--


Quote:
> Have you considered doing some charity auctions? I would definitely
> donate beads for the cause.

> -Kalera
> http://www.beadwife.com
> http://www.snipurl.com/kebay


> > Ok all...Normally I wouldn't do this...

> > I just talked to my mom about Rebekah (the correct way to spell her name
by
> > the way lol) and at the beginning of August, they have to go to Columbus
for
> > treatment. Then in January, they have to go back where Rebekah will have
to
> > stay for 4-6 weeks with no one allowed in her room but her parents.
(which
> > will be hard because the twins are still nursing)

> > Her parents are starting to run out of money. Meaning, their insurance
is
> > running down ( dad works, mom doesn't. She stays at home with the kids,
all
> > under 5 yr's old and 2 of them are twins.) Dad is also running out of
leave
> > time from work.

> > When they go to Columbus, they are not sure of where they are going to
stay
> > because the Ronald McDonald house is currently being renovated. They
aren't
> > sure if they will still be able to stay there, or will have to stay in a
> > hotel. Or if they have to pay for the hotel.

> > They have had a couple of fundraisers in Rebekah's name already. Well,
> > actually, the church had a sale and donated part of the profits.

> > If anybody has any ideas, let me know. Keep in mind, though, that we are
not
> > a creative family for the most part. I am the only one who makes
anything
> > and what I have wouldn't go for much of anything. Nor does anyone have
> > anything really to sell. (we're a fairly poor family collectivly. lol)
Also,
> > a good majority of the family has small children, so putting together a
sale
> > might be hard to do.

> > This is kind of hard for me to do here. I'm not one to ask for handouts.
But
> > I was asked by my mom to come up with something.

> > When she goes to Columbus, the doctors said that she will most likely
become
> > extremely sick from the treatments. And that they should find people to
> > watch their other kids. That will be no easy task. Like I said, the
members
> > of my family who don't work, have little ones of their own and the ones
who
> > don't work all day. It will be quite a task to accomplish this.

> > So if anybody has ideas to make money to help them out, or (and I
sheepishly
> > say this) would care to donate funds, let me know.

> > Please know that the only way that this involves me, is to pass
everything
> > on. I have this strange fear in the back of my head of someone possibly
> > thinking that this might be for me. Not at all.

> > Anything is greatly appreciated.

> > Thanks,
> > Rachel

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Georgi » Thu, 15 Jul 2004 04:11:21


Often communities with hospitals like this have certain motels which offer a
VERY big discount  to immediate families of out of town patients. I guess I
would start by calling the hospital (they may not routinely volunteer this
information, and you may have to be persistent, but don't give up!). If it
is the University hospital, the University would be a source of information
too (no doubt even more confusing (bigger bureaucracy)).  Good luck!

Georgia

(Didn't BeckiBead use to live in Columbus? Maybe she knows how this works.)

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Marisa » Thu, 15 Jul 2004 04:08:25


I would be happy to donate too.  There have been people running charity
auctions for friends or spouses before that people donated to and bought
things off of.  I think that is a really nice way to support a cause.

Definitely go with Kathy's advice on the main things... she knows what
she is talking about!  Anything we can raise by doing charity auctions
would probably help for extras and to take the corner off of some bills
I would think but they will need (and deserve to get) the types of
support Kathy suggested.

marisa2

Quote:

> Have you considered doing some charity auctions? I would definitely
> donate beads for the cause.

> -Kalera
> http://www.beadwife.com
> http://www.snipurl.com/kebay


>> Ok all...Normally I wouldn't do this...

>> I just talked to my mom about Rebekah (the correct way to spell her
>> name by
>> the way lol) and at the beginning of August, they have to go to
>> Columbus for
>> treatment. Then in January, they have to go back where Rebekah will
>> have to
>> stay for 4-6 weeks with no one allowed in her room but her parents.
>> (which
>> will be hard because the twins are still nursing)

>> Her parents are starting to run out of money. Meaning, their insurance is
>> running down ( dad works, mom doesn't. She stays at home with the
>> kids, all
>> under 5 yr's old and 2 of them are twins.) Dad is also running out of
>> leave
>> time from work.

>> When they go to Columbus, they are not sure of where they are going to
>> stay
>> because the Ronald McDonald house is currently being renovated. They
>> aren't
>> sure if they will still be able to stay there, or will have to stay in a
>> hotel. Or if they have to pay for the hotel.

>> They have had a couple of fundraisers in Rebekah's name already. Well,
>> actually, the church had a sale and donated part of the profits.

>> If anybody has any ideas, let me know. Keep in mind, though, that we
>> are not
>> a creative family for the most part. I am the only one who makes anything
>> and what I have wouldn't go for much of anything. Nor does anyone have
>> anything really to sell. (we're a fairly poor family collectivly. lol)
>> Also,
>> a good majority of the family has small children, so putting together
>> a sale
>> might be hard to do.

>> This is kind of hard for me to do here. I'm not one to ask for
>> handouts. But
>> I was asked by my mom to come up with something.

>> When she goes to Columbus, the doctors said that she will most likely
>> become
>> extremely sick from the treatments. And that they should find people to
>> watch their other kids. That will be no easy task. Like I said, the
>> members
>> of my family who don't work, have little ones of their own and the
>> ones who
>> don't work all day. It will be quite a task to accomplish this.

>> So if anybody has ideas to make money to help them out, or (and I
>> sheepishly
>> say this) would care to donate funds, let me know.

>> Please know that the only way that this involves me, is to pass
>> everything
>> on. I have this strange fear in the back of my head of someone possibly
>> thinking that this might be for me. Not at all.

>> Anything is greatly appreciated.

>> Thanks,
>> Rachel

--

===============================================================

                  Teva Yafae Original Designs
                      inspired by nature

For unique jewelry or apparel, or to learn about having your
own Jewelry home-party or children's party, please visit:

                  http://www.tevayafae.com

===============================================================

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Marisa » Thu, 15 Jul 2004 04:09:02


Why couldn't you set up something on eBay or Justbeads?

Maybe someone else here has suggestions on how to do that, since people
have hosted such things before.

marisa2

Quote:

> Well... I personally have no way to set up for something like ebay. That
> would have to take some thinking on that one, but it's not out of the
> question. As far as auctions around here, I have no idea how to go about
> setting one up. If anybody has info on that, I'll be glad to take it. Then
> there'd be the task of finding people to help out. Babysitters for
> everybody's kids, etc.

> I will definetly give this some good thought. If you or anybody else has
> ideas on how to set up an auction around here, please let me know.

> Thanks!
> Rachel

--

===============================================================

                  Teva Yafae Original Designs
                      inspired by nature

For unique jewelry or apparel, or to learn about having your
own Jewelry home-party or children's party, please visit:

                  http://www.tevayafae.com

===============================================================

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Beadbimb » Thu, 15 Jul 2004 04:22:35


I could donate beads too.  I'm really, really stretched for cash, but can
always come up with beads.  We could each do the auctions, and come up with
some sort if title to share and put in our auction, or one person could take
over the auctions.

--
Jerri
www.bead***.com

Quote:
> -Kalera
> http://www.FoundCollection.com/
> http://www.FoundCollection.com/


> > Ok all...Normally I wouldn't do this...

> > I just talked to my mom about Rebekah (the correct way to spell her name
by
> > the way lol) and at the beginning of August, they have to go to Columbus
for
> > treatment. Then in January, they have to go back where Rebekah will have
to
> > stay for 4-6 weeks with no one allowed in her room but her parents.
(which
> > will be hard because the twins are still nursing)

> > Her parents are starting to run out of money. Meaning, their insurance
is
> > running down ( dad works, mom doesn't. She stays at home with the kids,
all
> > under 5 yr's old and 2 of them are twins.) Dad is also running out of
leave
> > time from work.

> > When they go to Columbus, they are not sure of where they are going to
stay
> > because the Ronald McDonald house is currently being renovated. They
aren't
> > sure if they will still be able to stay there, or will have to stay in a
> > hotel. Or if they have to pay for the hotel.

> > They have had a couple of fundraisers in Rebekah's name already. Well,
> > actually, the church had a sale and donated part of the profits.

> > If anybody has any ideas, let me know. Keep in mind, though, that we are
not
> > a creative family for the most part. I am the only one who makes
anything
> > and what I have wouldn't go for much of anything. Nor does anyone have
> > anything really to sell. (we're a fairly poor family collectivly. lol)
Also,
> > a good majority of the family has small children, so putting together a
sale
> > might be hard to do.

> > This is kind of hard for me to do here. I'm not one to ask for handouts.
But
> > I was asked by my mom to come up with something.

> > When she goes to Columbus, the doctors said that she will most likely
become
> > extremely sick from the treatments. And that they should find people to
> > watch their other kids. That will be no easy task. Like I said, the
members
> > of my family who don't work, have little ones of their own and the ones
who
> > don't work all day. It will be quite a task to accomplish this.

> > So if anybody has ideas to make money to help them out, or (and I
sheepishly
> > say this) would care to donate funds, let me know.

> > Please know that the only way that this involves me, is to pass
everything
> > on. I have this strange fear in the back of my head of someone possibly
> > thinking that this might be for me. Not at all.

> > Anything is greatly appreciated.

> > Thanks,
> > Rachel

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by starli » Thu, 15 Jul 2004 05:42:47


Me too.

--
Starlia Klopman
www.klopmanstudios.com


Quote:
> Have you considered doing some charity auctions? I would definitely
> donate beads for the cause.

> -Kalera
> http://www.beadwife.com
> http://www.snipurl.com/kebay


> > Ok all...Normally I wouldn't do this...

> > I just talked to my mom about Rebekah (the correct way to spell her name
by
> > the way lol) and at the beginning of August, they have to go to Columbus
for
> > treatment. Then in January, they have to go back where Rebekah will have
to
> > stay for 4-6 weeks with no one allowed in her room but her parents.
(which
> > will be hard because the twins are still nursing)

> > Her parents are starting to run out of money. Meaning, their insurance
is
> > running down ( dad works, mom doesn't. She stays at home with the kids,
all
> > under 5 yr's old and 2 of them are twins.) Dad is also running out of
leave
> > time from work.

> > When they go to Columbus, they are not sure of where they are going to
stay
> > because the Ronald McDonald house is currently being renovated. They
aren't
> > sure if they will still be able to stay there, or will have to stay in a
> > hotel. Or if they have to pay for the hotel.

> > They have had a couple of fundraisers in Rebekah's name already. Well,
> > actually, the church had a sale and donated part of the profits.

> > If anybody has any ideas, let me know. Keep in mind, though, that we are
not
> > a creative family for the most part. I am the only one who makes
anything
> > and what I have wouldn't go for much of anything. Nor does anyone have
> > anything really to sell. (we're a fairly poor family collectivly. lol)
Also,
> > a good majority of the family has small children, so putting together a
sale
> > might be hard to do.

> > This is kind of hard for me to do here. I'm not one to ask for handouts.
But
> > I was asked by my mom to come up with something.

> > When she goes to Columbus, the doctors said that she will most likely
become
> > extremely sick from the treatments. And that they should find people to
> > watch their other kids. That will be no easy task. Like I said, the
members
> > of my family who don't work, have little ones of their own and the ones
who
> > don't work all day. It will be quite a task to accomplish this.

> > So if anybody has ideas to make money to help them out, or (and I
sheepishly
> > say this) would care to donate funds, let me know.

> > Please know that the only way that this involves me, is to pass
everything
> > on. I have this strange fear in the back of my head of someone possibly
> > thinking that this might be for me. Not at all.

> > Anything is greatly appreciated.

> > Thanks,
> > Rachel

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by starli » Thu, 15 Jul 2004 05:44:34


Rachel,

I'll be more than glad to coordinate the auctions for you and set up a
special account on my website.  I can set up an account at PayPal just for
your family so the payments can get there asap.  I can also ask for beads
from WC participants.  They are a great bunch of folks who help out all the
time.  We could list on JustBeads and eBay.

Starlia

--
Starlia Klopman
www.klopmanstudios.com


Quote:
> Well... I personally have no way to set up for something like ebay. That
> would have to take some thinking on that one, but it's not out of the
> question. As far as auctions around here, I have no idea how to go about
> setting one up. If anybody has info on that, I'll be glad to take it. Then
> there'd be the task of finding people to help out. Babysitters for
> everybody's kids, etc.

> I will definetly give this some good thought. If you or anybody else has
> ideas on how to set up an auction around here, please let me know.

> Thanks!
> Rachel

> --



> > Have you considered doing some charity auctions? I would definitely
> > donate beads for the cause.

> > -Kalera
> > http://www.beadwife.com
> > http://www.snipurl.com/kebay


> > > Ok all...Normally I wouldn't do this...

> > > I just talked to my mom about Rebekah (the correct way to spell her
name
> by
> > > the way lol) and at the beginning of August, they have to go to
Columbus
> for
> > > treatment. Then in January, they have to go back where Rebekah will
have
> to
> > > stay for 4-6 weeks with no one allowed in her room but her parents.
> (which
> > > will be hard because the twins are still nursing)

> > > Her parents are starting to run out of money. Meaning, their insurance
> is
> > > running down ( dad works, mom doesn't. She stays at home with the
kids,
> all
> > > under 5 yr's old and 2 of them are twins.) Dad is also running out of
> leave
> > > time from work.

> > > When they go to Columbus, they are not sure of where they are going to
> stay
> > > because the Ronald McDonald house is currently being renovated. They
> aren't
> > > sure if they will still be able to stay there, or will have to stay in
a
> > > hotel. Or if they have to pay for the hotel.

> > > They have had a couple of fundraisers in Rebekah's name already. Well,
> > > actually, the church had a sale and donated part of the profits.

> > > If anybody has any ideas, let me know. Keep in mind, though, that we
are
> not
> > > a creative family for the most part. I am the only one who makes
> anything
> > > and what I have wouldn't go for much of anything. Nor does anyone have
> > > anything really to sell. (we're a fairly poor family collectivly. lol)
> Also,
> > > a good majority of the family has small children, so putting together
a
> sale
> > > might be hard to do.

> > > This is kind of hard for me to do here. I'm not one to ask for
handouts.
> But
> > > I was asked by my mom to come up with something.

> > > When she goes to Columbus, the doctors said that she will most likely
> become
> > > extremely sick from the treatments. And that they should find people
to
> > > watch their other kids. That will be no easy task. Like I said, the
> members
> > > of my family who don't work, have little ones of their own and the
ones
> who
> > > don't work all day. It will be quite a task to accomplish this.

> > > So if anybody has ideas to make money to help them out, or (and I
> sheepishly
> > > say this) would care to donate funds, let me know.

> > > Please know that the only way that this involves me, is to pass
> everything
> > > on. I have this strange fear in the back of my head of someone
possibly
> > > thinking that this might be for me. Not at all.

> > > Anything is greatly appreciated.

> > > Thanks,
> > > Rachel

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by starli » Thu, 15 Jul 2004 05:45:42


Kathy is the fountain of knowledge.  I didn't even know about all these
programs.

--
Starlia Klopman
www.klopmanstudios.com


Quote:
> On Tue, 13 Jul 2004 13:37:33 -0400, Rachel T. wrote

> > Her parents are starting to run out of money. Meaning, their insurance
is
> > running down ( dad works, mom doesn't. She stays at home with the kids,
all
> > under 5 yr's old and 2 of them are twins.) Dad is also running out of
leave
> > time from work.

> Okay, first place for Dad to stop is with the benefits person at his
> work.  He needs to apply for FMLA (in the US).  If the employer has
> over 50 employees, it is required to provide this benefit.  That
> provides job security and will keep the health insurance in force,
> although they don't have to give salary.  (Some do, though, and some
> states allow the person to collect unemployment)

> > When they go to Columbus, they are not sure of where they are going to
stay
> > because the Ronald McDonald house is currently being renovated. They
aren't
> > sure if they will still be able to stay there, or will have to stay in a
> > hotel. Or if they have to pay for the hotel.

> Stop II:  Contact the people at the Ronald Macdonald house and see
> what arrangements they have made for families while they're
> renovating.  I'd bet a dollar that they have reserved a block of
> rooms at a hotel for families to use at a free or greatly reduced
> rate.  This is a well run organization, and wouldn't just drop off
> the face of the Earth for months, leaving families in a bind.

> Stop III:  Ask for an appointment with the hospital ombudsman or
> financial officer.  Apply for free care (that's what it's called
> under the law)  It's her job to work out financial details between
> insurance companies, patients and the hospital.  She's on your side,
> and can make the money part of treatment become a lot less stressful.
> There will be forms to fill out, but that's just to prevent people
> who don't want to pay from getting benefits, as opposed to people for
> whom treatment will cause a financial hardship.

> Stop III:  Social Security office.  Really.  If Rebekah is disabled,
> and the disability is expected to last a year or more, she may be
> entitled to collect disability benefits.  It's a headache to apply,
> but could really help in the long run.  Her benefits will be tied to
> the amount her highest paid parent put into the system, since most
> five year old kids don't pay FICA.  If she gets SSDI, she can also go
> on Medicare after a while, and the insurance problems will then
> disappear.

> Stop IV:  Public School System wherever she lives.  By law, your
> niece has the right to a free and appropriate public education (as do
> her sibs).  There are boatloads of services that can be provided by
> the school system that fulfill this requirement.  My step-nieces have
> some serious health challenges, and their school system does amazing
> things for them - even to the point of building ramps to the house
> for the wheelchairs and such.  Respite care for parents is part of
> this mandate.

> Schools are often amazing in arranging fund raisers for their
> students as well - my town throws at least five or six each year for
> different kids facing big health challenges.

> > If anybody has any ideas, let me know. Keep in mind, though, that we are
not
> > a creative family for the most part. I am the only one who makes
anything
> > and what I have wouldn't go for much of anything. Nor does anyone have
> > anything really to sell. (we're a fairly poor family collectivly. lol)
Also,
> > a good majority of the family has small children, so putting together a
sale
> > might be hard to do.

> Most communities have support groups for families with children
> battling serious health issues.  Ask at the hospital or Ronald
> Macdonald house for some referrals.  Those folks, out of necessity,
> know how to get every benefit that's coming to their kids.  After all
> those avenues are exhausted, then worry about putting on sales and
> such.  I'd be surprised if it turns out to be necessary.  One person
> in your family is going to have to become amazing with paperwork and
> organization - take my word for it.

> If you are very organizational, it can be you -- get yourself some
> file folders and start documenting everything.  You might have to
> debrief with the parents on a daily basis, but it is well worth it.
> I got _everything_ paid for when my MIL had cancer - it turned out to
> be emotional Hell, but not financial.

> > When she goes to Columbus, the doctors said that she will most likely
become
> > extremely sick from the treatments. And that they should find people to
> > watch their other kids. That will be no easy task. Like I said, the
members
> > of my family who don't work, have little ones of their own and the ones
who
> > don't work all day. It will be quite a task to accomplish this.

> There is one set of twins as siblings?  Do you have a YMCA in your
> town?  Here, the Y provides day care for kids who need it, regardless
> of cost.  A family member can contact them for all the details, and
> then it would be caring for the sibs at night, which can be
> accomplished by people who work during the day.  Perhaps they could
> split the night care with (say) an aunt and the grandparents.

> What you don't want is a different person taking care of the kids
> each day.  It would be a horror for the little ones, and boy howdy
> will they start acting out!  (No one needs that right now) I wonder
> if it's possible for the kids to go to day care during working hours
> and their own home at night.  It'll be tough on the parents, but if
> one of you guys could stay overnight to lend a hand (and that can
> easily be someone different every day), it would keep the family
> together and help the siblings manage during this time.  Probably the
> most emotionally healthy way of handling the whole thing.

> > Please know that the only way that this involves me, is to pass
everything
> > on. I have this strange fear in the back of my head of someone possibly
> > thinking that this might be for me. Not at all.

> Never!  That would make you Pure Evil, and you most certainly are
> not.

> You're in my thoughts and prayers, and I hope that we can help.  I'll
> do whatever I can, and Rebekah will be in our hearts every day.

> Hugs,

> Kathy N-V

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Rachel T » Thu, 15 Jul 2004 06:20:51


Good to know. Yet another suggestion to add to your list.

Thanks bunches Kathy!

Rachel

--


Quote:
> On Tue, 13 Jul 2004 14:59:28 -0400, Rachel T. wrote

> > As far as the schools, she's not in school yet so, I don't know how that
> > would work. Doesn't hurt to try.

> Doesn't matter.  She's old enough for early intervention, as are her
> sibs.  My step-nieces started their early intervention and therapy
> stuff right after birth.  Call your local school department and ask
> for their SPED coordinator - you'll need to be persistent, but the
> services are there.

> > The babysitting route..the twins aren't even a year yet. I do know that
a
> > few of older cousins do stay at night to help out. They switch shifts.

> Daycare is available for children 6 weeks old and up.  I know that no
> one wants to put babies that young in day care, but this would only
> be a temporary situation to shield them from all the stress of their
> sister's illness.

> Kathy N-V

 
 
 

OT: RCB Help Desperately Needed! Please Read!

Post by Su/Cutwork » Thu, 15 Jul 2004 06:44:38


 > Daycare is available for children 6 weeks old and up.  I know that no

Quote:
> one wants to put babies that young in day care, but this would only
> be a temporary situation to shield them from all the stress of their
> sister's illness.

And in addition, it is important that the parents have the time to not only
cope with what's happening to them and their daughter but what effect it
will have on everyone.  Daycare is a vital part of this.

When my husband was in chemo for weeks on end, if I didn't have someone to
help take up some of the burden with the girls, I would have been even more
of a wreck than I was.

-Su